- When did you know that you aren’t quite healthy?
- Did doctors give you the right diagnosis at once or after several false tries?
- How old were you when started using your wheelchair?
- Do you get any medical treatment? Did you feel better after some of them?
- What kind of exercises does help you? Any system?
- Have you been in a rehabilitation center?
- Have you passed any course in hospital?
- How long can you stay sitting during a day?
- Do you need any help during the night?
- Can you sleep on your back?
- Which food do you try to avoid for not putting on the weight?
- Do you get any help from the social services of your country?
- Have you any possibility to work?
- How often do you go outdoors? Do you travel sometimes?
- What helps you to cope living with SMA?
- Who helps you with toilet and bath? Do you pay for this?
- Have you got a hoist? Did you buy it or get for free?
Answers of Martyn Sibley
